Everything went as planned. Although I got a little frustrated because the motivation letter for the authorization for Celina's surgery went just out on Friday. I spend most of the day with the medical aid either on the phone being dropped out of the line 3 times and then went on the chat line to get answers for another hour or so. Just to end up at about 4pm on Friday with a decline in all points. They just straight forward don't want to pay coming with all kinds of reasons that actually do not make sense at all. The surgeon was so disappointed I could hear it in his voice. The paediatrician is frustrated and I needed the whole weekend to pull through again. Since Monday I am trying to find testimonies of other Cerebral Palsy children who had this done to build up a case for an appeal to this decision. Further more both doctors are going on holiday so its all postponed to about in a month.
Reasoning for decline, they first said it is not covered on the plan we are on. And then also she needs to be first on a Mickey(feedingtube directly into her stomach) and also already on a trachea (breathing tube in the front of her neck). Helllllllllloooooooo????? Why must one be first half dead before they allow for a surgery. And both those things also require surgery and cost a lot of money. Which by the way would probably cover this surgery. Not even to speak of the hospital visits we might have in future because of this condition not being treated. And she is already on a nasal gastric feedingtube and formula or liquid food which is not exactly affordable. Oh yes and not to forget that she is a so called cerebral palsy child and these procedures are usually not done on these children. That gets me really going.
No,no,no this is just ridiculous and we are going to fight this decision. Up to the ombuts man if needed.
In all this my little angel is still smiling and laughing although also sounding a bit like a tractor because of the obstruction in her throat. I look at her and think my beautiful angel you really deserve better. And I will fight for you like I have done the last 12 years since her accident. And we have always won the wars and will win this one too. Giving up is not in my nature and I guess in no mother's nature when it is about your precious child, we fight to the end. That's just how God made us mothers.
With that said keep your eyes on the blog to see how it goes on.
If God is for us who can be against. He will never leave nor forsake us. He is our heavenly Father He is always by our side. Fighting for us. Thank you Lord.
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