Our daughter Celina was 2 1/2 years old when she had a near drowning incident and was 40 minutes dead. When she came out of hospital after 3 month with a feeding tube and feeding machine she was left with no function and our life changed completely. Everything had to and still needs to be done for her. She fought many times for her life in the last 15 1/2 years and went through great challenges. The feeding tube was taken out after 1 year as I had, with much patience and perceverance, taught Celina to eat and drink orally again. She still struggles with her tummy due to her immobility and also with seizures. Seizure medication gives her all the side effects you can find on the insert and the last time we tried got us 3 month in hospital.
She still struggles with chronic constipation which is fairly successfully treated with Movicol but causes seizures because of the high dosage needed and therefore not a longterm solution. And whenever we took it off the seizures subsided completely but so did the stools.
In 2017 I started her on doTERRA essential oils which made a big difference with the constipation and also the seizures. I would be able to get her completely of the Movicol with an ongoing supply of the oils which i have not been able to keep up financially. It is heartbreaking to not be able to see Celina seizure and constipation free due to financial constraints. Not even to think of how the seizures and constant constipation pains hold her back from progressing.
Furthermore we are in need for a new wheelchair. Hoping the medical aid will at least pay partly. We will have to fundraise the rest.