savest place to be on a New Years Eve

We are celebrating New Years Eve in the savest place in the world....... in hospital. Celina is almost ready to go home.  She still had some seizures today but it is getting better. She is off all painkillers. They are just given if needed and it doesn't look like she still needs it. She had none the whole day. Celina is also still sleeping a lot which might have to do with the big dose of Valium she is on. With all the sleeping it is difficult to get enough food into her. Now my husband is taking me out for dinner.

Seizures?????

Today was a different kind of day. Not so nice but with a happy end. Early morning about 5.30 Celina started having some short seizures. She already had some yesterday evening. She had some a couple of nights ago too. Then they were gone and last night they started again. The nurses and myself started going through the meds, what was newly given, what was different. Where did this come from??? Then in the afternoon Bev said she wanted to call the stand in doctor if we could leave the next dose of ponstel because this was the only new medication she got. We just changed it from syrup to capsule. Same ingredient. Still did not seem to make sense. Then suddenly I thought that a couple of days ago we tried one capsule and it was the following night that she had the seizures. We went back to the syrup because Celina still had the nasal gastric tube in and it would be easier to give the syrup especially at night. And the seizures were gone again. So, yesterday after taking out the nasal gastric tube we changed both syrups, one to tablet and one to capsule. And guess what??? The seizures started again and worse then the first time. The nurse called the doctor and he agreed to stop it for now and just see what happens.
Later I checked the package of the syrup and thought I am going to get the package of the capsules tomorrow to see what the difference is. I looked at the package paper and the ingredients and my eyes fell on the mg's it was a whole 100 mg less in the dose of the  syrup Celina had then what was in the capsule and the paper was for both concerning the side effects and everything else. So, I read it and guess what, in effects of overdose was standing seizures. Wow, now it started coming together. Besides that, I then on top if it found out that this medication is an anti inflammatory and Celina is not supposed to be on those because of the stomache ulcers she had last year. I am so happy God lead us to this and we took her of it. By the evening our little angel was soooo much better and was laughing such a lot and had not a single seizure anymore.
What a change. It is amazing what one medication can do if our bodies do not agree with it or one takes to much. I am so happy that our gorgeous girl is back to normal. I am so exited and rejoicing.
With every seizure I was praying and asking the Lord to show us what it was, to show us what was the cause. And he did.

Our big great God.

Thank You Lord, You are amazing. 

Tubeless

This morning the sister took out the nasal gastric tube and Celina is completely on oral food again. The feeding wasn't yet back to normal but with the night feeds still on the appetite couldn't have been normal anyway. So, I guess from tomorrow on the appetite will be back to normal since Celina is getting no night feeds anymore. Lifting her for nappy changes is also going well now. She doesn't show any signs of pain at all. So I am hoping when Dr Lund is back on Monday he will decrease the painkillers a bit.
This afternoon we put on "Nimo" for Celina and put the headphones on her head. It was just too gorgeous how she watched the movie starring at the TV and grinning. Later she still watched "Ice Age 3" and burst out laughing. It was hilarious.

Hey, don't disturb me I am watching a movie.

 

 

Unfortunately I did not get a photo of the laughter. But even the sisters looked over from there desk to see what was going on. Another mom said to us in the evening that Celina is a very cheerful child she hears her laughing when she walks past her room.

And Celina also still had more gifts today from a very long time wonderful friend .

Four more days then we will be going home. Well, somehow hoping we can go to our own home.

With God nothing is impossible. He is our provider. He supplies for all our needs according to His riches in glory by Jesus Christ(Phil 4:19)

Thank You Lord for Your provision in everything. 



Happy Birthday Celina

Wow what  a birthday. Early the morning the phonecalls started. Birthday wishes coming in. Ma was first, then other friends and family. And the first presi today came from our physio...... a softtoy Nimo.... so little dude has a friend. Later we got a gift from Constantiaberg Hospital. A backpack, a teddy and a chocalate pop. And there were lots more presents and visitors in the afternoon.

mommy dressed me up all in pink and white for my special day.

check out all my presis at the foot of my bed.

And the balloons. I was blessed and enjoyed my birthday.

Now we are tired and go to bed. Tomorrow is another day. Thanks to all who made this day special to our little angel.

 

Thank You Lord for a wonderful blessed day. Thank You for all the visitors friends, family and suprise visitors.

First present

Look at me I am holding my first birthday presi.

 

We had a good day. Celina had 3 portions of food and 2 bottles of water, they went in fairly easy. Then about 7.30 pm we had two visitors, Clive and Amy. They brought an early birthday present. Amy is too young so she could not get in to see Celina but I had her on my arm and we talked while daddy went to see Celina and to give her her birthday present. The purple goes nice with the pink of the cast. A bit of colour in our lives. And this was an early presi because Lina's birthday is just tomorrow. And we gonna have a partyyy! Watch this space.

Thank You Lord that You are in our lives and have always been there even when we did not know it.

Almost tubeless

What a morning!!!! Dr Lund came in and is very happy with Celina's progress and the sisters took off all the dressings. Well, the one only half ways because the other half is under the cast. The scars all healed very well so far. They just thin lines. Three of them on the right and one on the left. The longest is about 10 cm. They do that very nice nowadays. Then they took out the CVP line and last but not least the catheter. Sooo, we are just left with the feeding tube. And mommy is going home today to cook so that Lini can get some proper food. Through all this Celina just looked pretty and did not even pull a face. No crying, just a brave girl. Wow. Amazing.

no tubes anymore only the one in my nose

And I am a happy chappy, smiling and laughing again or better still

 

Thank You Lord for never leaving nor forsaking us.  Lord You are the love of our lives.

Working towards getting rid of tubes

Dr Lund was very happy with Celina today. The swelling goes down more and more. She just still has a lot of bruising on her right side. The pain meds were changed to oral meds and when she is drinking enough they are taking the CVP line out of her neck. I am hoping for Friday. Tomorrow doctor will look at the cuts and see if they can maybe leave the dressings off. It all depends on how they have healed. If they are ok the catheter will come out and we start with nappies.
Dr Lund says the estimated time for discharge is the 2.January. That means one more week.
Well, I will go home tomorrow to cook some meals for Celina and we will start and try feeding more orally. She had 2 light meals today. Its a start. And the water intake is getting better too.
We are making steps forward. We still need to get rid of the feedingtube too. And she is also more awake now.

With the help of our very capable physio Danielle, we turned Celina slightly on her side. Just about 5 cm of the bed. She did not even pull her face. Until now we had no sign of pain at all. Besides maybe the two times when she coughed. Otherwise she is just amazingly pain free. And guess what we had a great giggle from her.
She is just so amazing. So brave, so strong. Our tough cookie.

Thank You Lord for carrying and leading us on this journey. Thank You for keeping Celina pain free and that she is recovering so amazingly.

Thank You for being Lord of our lives.  

Christmas day

We had a wonderful Christmas Eve dinner at Ma's house and I was back at the hospital just before 11pm. Lini and I were sleeping late this morning. She was awake just about 1pm and I tried to feed her but just got in about 5 teaspoons with a lot of patients. I ask the doctor why Celina is still so sleepy a week after the op and we decided to try and leave the one painkiller away. Just give it if she needs it, if she starts moaning. By now she missed a dose already and is doing well. We also lifted her up to check the back to make sure there are no bedsores. And there I saw that actually the whole right side almost up to the armpit is bruised. Otherwise the back looks good. And the most amazing thing was that she took the lifting very well today. No pulling of her face in pain.
Clint arrived at past 1 pm with our lunch and we took a blanket and had a picnic in the hospital garden.

 

 

And we had a surprise visitor, an old friend of Client. It was really nice to have a visitor and chat a little.

 

Later around 6 pm Celina was a little more awake and I tried to feed her again and this time with success. She ate a nice portion and had a little water.

 

Brushing teeth and washing face and hands......... ready for the night. Holding little dude in her hands she fell asleep.

I hold my little dude tight.

I am exhausted.

Tomorrow Dr Lund is going to be back and we will see how we will go on.

Well done Celina a good day.

Thank You Lord for carrying Celina on this journey, keeping her pain free. Thank You for surrounding us with amazing people looking after Celina.

Thank You Lord for a good day.

Lini smiling again

Our little angel is more and more awake and smiling.

Just this very moment while I am writing she tried to laugh but then stopped again because it was a bit painful. And then followed by a big yawn.
The way is still long before we can go home. The IV must still come out and that is just happening when she is drinking enough. The nasal gastric tube is also still in because I can by far not get in enough food. Just a 5th of what she normally is eating. The catheter is still in too because of the cuts. They must first heal properly. And there is not yet really any much movement possible. We still need 3 people at least to clean her up when she had a pooh or the sheet needs to be changed. And because of just being able to lay with only 30 % up she still needs the chest physio to keep the lungs clear. And we had another heartsore cry when she caughed this morning after eating a little.

Soooo, we might have to organize a little birthday party here in hospital. But step by step, day by day, lets see what the week is bringing.

Christmas in hospital

Yes.... we are spending Christmas in hospital. Celina started yesterday afternoon to be a bit more awake and had two little meals. And she was smiling. Such a strong girl. We changed her sheet yesterday and there were 4 people needed again. Johjohjoh she is heavy. The feet have gone down with the swelling quite well but around the cuts its still very swollen.

I spend my night last night making Christmas crackers right here in hospital and I was in another room and Clint was gone. When I came back in Celina's room she was still wide awake probably thinking where is everybody. I told her mommy is here and she must go sleep. And she was gone within seconds. Amazing.

Thank you Lord for her recovery so far and that she has no pain.

Visiters

Celina's Ma and Greatgrandma came still to visit. Celina was sleeping but when she heard Ma's voice she woke up and stayed awake the whole time. When they where gone Celina started making a whole lot of sounds and even had a smile. That was so nice to see. And then she had some water and went back to sleep. OK, so there was still a little excitement to end of the day. Thank You Lord.

Back in the ward

Celina had a good night. Me too. She is still having nebs and chest physio and is still sleeping most of the day. When she is awake I try to get some food and water in. It takes a lot of patients to feed her but she needs to move her mouth and also have some water to keep it wet. Because Celina can't close her mouth it gets dry quickly. The orthopaedic surgeon was here already early the morning, before going off on holiday, to check on our little angel. He seems to be happy with everything. Looks like it is going to be Christmas in hospital. Haven't had that yet.

 



It's fairly quiet today. Lini is pain free. The painkillers seem to work well. Left leg looks like the swelling has gone down a little. Right hip still very swollen. The cuts are clean, not oozing anymore or just very little and no blood. Today is a day to drive our systems down and relax from the excitement and exhaustion from the last 3 days. Allan our Priest came to visit and to pray with Celina. No excitement today just Healing sleep.

Thank You Lord for a peaceful day and that Celina is pain free.

Thank You Lord for your amazing LOVE. 

Last minutes in ICU

This morning another blood test was done and the result was that the Haemoglobin is still not right which means that Celina still doesn't have enough blood so she is busy getting her third unit of blood today. She must have really lost a lot of blood during the op. Anyways its getting better. The epidural was removed this morning and Celina was crying the first time. It was heartbreaking. Then at 12 pm she was brought down to A-ward(children ward).
It feels much better to be here. A much warmer atmosphere. Next at 3 pm Celina's wound dressings will be changed, the wounds are still oozing. She will have some chest physio and she will be put on a air mattress which is moving up and down electronically so that Celina is not getting any bedsores. They say this mattress cost a R45 per day. There is not much other possibility to move her at the moment. This moving will need the whole ward team because she is heavy and the spica cast is awkward.

 

 

A little later Celina still had a nasal gastric tube inserted because I can't get in enough nutrition's orally neither enough liquid.

Thank You Lord for Your healing power. Thank You Lord for Your love. Thank You Lord for never leaving nor forsaking us.





It was a long day

It was really a long day. We are hoping to go back to the ward tomorrow. ICU is freezing ice cold and in some way boring that one can't move like in the ward. The last two days each day someone died there. So, the ward will be much better. The staff in ICU is amazing and they really doing hard work and still are able to keep smiling. Just special people. It needs passion and love to do a job like that.

Lini had a good day. Was eating a bit and the drinking was also a bit better than yesterday. We lifted her up a couple of times today to release pressure on bum and back. Wow, is the child heavy, with casts and all. That is hard work. The one wound is still leaking a little so we changed the linen saver twice today. The right side is still very swollen, about double as big as normal, even the right foot is a bit swollen and the face a little too. They did 3 cuts one in each groin and one on the leg.Celina is also sleeping a lot. I spend a lot of my day moving her feet,hands and arms to keep the blood flowing. Very important. We might start by tomorrow with a little physio again.

Lini this afternoon, awake and pain free and without nasal breathing tube.
I need to go and get some sleep now. Tomorrow will be another long day.

And don't forget Jesus loves you.

Tough cookie

I changed my plans. I was so tired last night that I decided to go downstairs to A-ward and sleep on  my sleeper couch instead of next to Lini in a lazy boy. I needed a good nights sleep after all the happenings of the day. And if there was anything they needed me for they could call and wake me.
I went up this morning at 7 am and Celina was awake already. She looked beautiful like always.
Dr Penn was the first arriving. They had taken blood early the morning and Celina's haemoglobin wasn't right yet so she is at the moment getting another unit of blood. She really lost a lot of blood yesterday. And even I could see that her lips and fingernails looked pale, almost white. This morning they started already looking slightly pinkish.

last night awake and still pain free with epidural

Lini with little nasal thing helping her to breath and Daddy wanted to put a golfball on it it play.

 

The nasal thing was removed this morning and Lini had a little porridge and a piece of banana. Then Dr Penn gave Celina over to Dr Lund and he gave his orders. Again nebs and chest physio and 3x a day Valium for now so she would not spasm. Guess that also means sleeping and probably feeding tube. We will see. Then Dr Campbell joint in. Celina can have the bed in a slight sitting position but not more then 30% up. They all looked at Celina and were amazed how good she looked after such a heavy op. Dr Lund called her "A TOUGH COOKIE". Well she must have something from mommy. The epidural will still stay in til tomorrow. And it is not a paralysing one just a pain killing one and she is even able to move her toes. Impressive!!!!

 

Tomorrow comes the hardest part when the epidural is out to start the painkillers and balance it in a way that she is as pain free as possible. She is not allowed to have any spasms therefore the high dose of Valium.

 

For today we are going well. I left  behind me my first shock that they did not get the femurs back and moving on to recovery stage. The main important thing is that she will be much better and be able to stand again and be far more comfortable. Thank you Lord, thank you doctors, sisters, nurses everybody who is around us. We really feel like VIP's. Besides that we are always VIP's in God's eyes.

 

All glory to God





short update more tomorrow

Celina is out of theatre since about 1.45 pm. Came into ICU about 2.30. She will be able to stand again. Unfortunately they did not manage to get the femurs back into the sockets. She might have to have a hip replacement when she is about 15 and her bones are not growing anymore.
The doctors have been great. They gave me updates from the theatre every 11/2 - 2 hours via sms which was great.
She will be for about 2-3 days in ICU because they put an epidural in so that she does not feel any pain. And she had a blood transfusion because she lost quite some blood.
I will be staying with Celina in ICU over night. Nooooot going anywhere.

In Theatre

Wow brought Celina this morning at 8am to theatre. As we pushed her out of her room my tears started coming and as much as I tried I could not stop them. The guy who rolled us up tried to cheer me up with great success. They just know what to say. Then a short wait in the waiting area. The anaesthetist both came to check on us and their assistants too. All making little uplifting jokes. Suddenly Celina started getting unsettled and I tried to calm her down.

One of the anaesthetist came to fetch us. The walk through to the theatre is the same thing they talk and keep your mind occupied. The two ladies who came to take the bloods were waiting outside already all dressed up in theatre gowns. Dr Penn made still photos of us with his I Pad and I made my own. He promised to call me for an update after 3 hours that means about 11 am. And to send pics via his I Pad.

Lini and mommy in theatre

The anaesthetists and assistants lifting Celina over onto the op table

Dr Penn starting the anaesthetic singing "Oh my Darling" to Celina and kissing her all over her face.

 

We are blessed with an amazing team of doctors and assistants.

Thank the Lord.

All Glory to our King.

He organized an amazing medical team.



2 hours gone 4 to go. I am going well so far. It was a bit heavy this morning to bring her up to theatre but I know she is going to be fine and we are having a year in front of us of standing and walking, joy and rejoicing.

Ready to settle

Its 9 pm and Clint is gone again after bringing a lovely supper prepared by Ma. Celina and I are ready to settle for the night. Preperations for the op will start at 6am with pre medication, and the last neb and then at 7 the last chestphysio. 7.45 we will be fetched for the theatre. I will go in with her and stay until the anaestetic has set in and she is sleeping. The first hour she will be prepared. They will put in lines and a katheter, take bloods and do a crossmatch(bloodgroup) to get blood for a possible blood transfusion. Once they have the results they will get the blood within 90 minutes. Just if she needs it. Then they will also do x-rays to look at the hips again to see what it looks like.
They are going to start with the right side. Once this is done the anaesthetist will deside if she is fit enough to do the left side. They are going in with 2 orthopaedic surgeons and 2 anaesthetists. The other thing they might do is giving Celina an epidural for the first 48 hours after the op so she will feel no pain at all. All depends on how the op goes. The length of the surgery will also depend on what they find when they open her up.
One of the anaesthetist will keep me updated via phone of what is going on in the theatre.
I guess that all sounds quite hectic. I have actually calmed down completely and trusting completely in our wonderful Lord that everything will go well. We got good doctors on board all in doublepack and the Lord is the headsurgeon and anaesthetist. And we have lots and lots of praying people around us.

       Worry and fear are not from God and shall stay far away from us.

                                            Trust and joy shall be with us.

Back in hospital

Here we are again. Back in hospital. A day before the op. And Celina had her first neb already. The doctor checked her out too and everything is ok. Lungs sound good and everything else is good too.
Soo, we are ready .... at least physical, I am not so quite sure about the emotional and the spiritual side. I think the spiritual side is getting there too. Emotionally it is still a bit strange. Sometimes I just want to cry. I think the talk with Dr Lund this morning helped. I am feeling better. And we will get through this, with God on our side everything is fine nothing can go wrong. Lets just hold on unswervingly to our faith. God is the Great Physician. There is no left and no right just a straight forward focus on Jesus.

Tomorrow 8 am to 2 pm is the time to pray. So please stand with us in agreement that Celina is healed, God works His miracles through the 2 surgeons working on Celina. She will recover speedily and there will be no trauma, no pains in Jesus name.

Just spoke to the anaesthesiologist. They actually going in tomorrow as double pack too. So it will be too orthopaedic surgeons and too anaesthetist. Wow. This is major, huge. And He signed a paper in front of me that he is taking med aid rates and even if they pay nothing he will not charge me. I must not worry about money and just concentrate on my daughter. He also said that we all must work as a team and they can't do it without the mother. Celina might get an epidural after the op for pain but it depends all on how she is doing, otherwise she will be on morphine for 24-48 hours or so. This will obviously tell you how heavy this op is. Celina will most probably go for 24 hour or so into high care before she comes down back into A-ward.
After speaking to the anaesthesiologist I feel a bit more at peace. And again God puts everything and every person  in place in a just amazing way. The doctor gave me his card and said that I can call him anytime if I have questions. Even his residential phone number is on his card. And he wrote down my phone number and said he will give me updates via phone during the op. Once again and like always thank you Lord.

All packed

The week at home felt like just a moment. Here we are. Its Monday evening and we are all packed, ready to go to hospital tomorrow morning. Celina had her last bath for now. And guess what she fell asleep.

The next will be probably just in 3 month. I am talking about a full bath. The next 3 month she will just have bed baths. And her hair washed in an inflatable hairwashbasin. So, tomorrow will be a whole day of preperation. Nebs, chest physio, bloods and I don't know what else. Hopefully still going for a little walk through and around the hospital and maybe in the garden, checken out my special tree.
So,then ....... time for bed. No not yet sleeping ......a little reading and speeking to my heavenly Dad.
I could not do this without Him. I am so sore for my little girl and what she has to go through now again. Only my Abba Father can take me through this.

Almost there

 

Wow, is it really Sunday already? Two more sleeps to the big day. When I had Celina today over my lap on the tummy I saw how bad her right leg had gotten. It is soooo twisted when she is on the tummy. It doesn't look too bad when she is sitting. Well, it will be soon all in place again and then next year she will stand.

 



For now we are sweating and that makes one also tired. Not only Lini but also our other family member......

 

TIGGER, are taking a nap.

                                      

while Daddy is doing some hard work.

 

Mommy is doing ......obviously the photos.



 



 And then Lini is wide awake again and its time for a snack and another day is almost gone.

 

Just chillaxing

The days go by and the surgery is coming closer. In the meanwhile Lini and myself are lazing around. Chillaxing.

What else can you do in this heat?
Well this afternoon we are going to Canalwalk to get our voucher and shop a bit. It should be nice and cool in the mall. Just hope it is not too full. Lini is going to stay with Ma, going on with the chillaxing. And then its just the weekend and back to hospital. Before you know it is all over.
Lini woke up this morning already laughing. What an amazing child. Thank you Lord for her joy.

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At home

We went home yesterday morning. Now we are spending a week at home relaxing, Celina still recovering and I try to get my mind around the op next week. It is now going to be the 19. December. We will be going to hospital already on the 18. December early in the morning and doing all what was originally planned. Bloods, nebs, and chest physio. This is not easy for me, I have a little trouble to have my little angel 6 hours in a theatre being cut and sawed on. Well, I have another week to pray and put my eyes on Jesus and Jesus alone. And to know that "ALL IS GOOD" like a good friend from Canada always used to say. Is still saying???? I know God is with us like it was  prooven yesterday again. For those who did not listen to Kfm this morning at 8, we made the Christmas wishlist and Kanalwalk gave us a ........breath deep in ...............and deep out........................................ R 10 000 shopping voucher to by nappies, wetwipes etc, just everything Celina needs and to spoil ourself a bit for Christmas too. Like Clint said on the radio ......ALL GLORY TO GOD. He is King and in our lifes everything.  

Lini is having a beautinapp here next to me. Not that she needs it, she is already more then beautiful in every way. And then later I will give her a wonderful hot bath getting the hospital smell off. Naaa.....is not that bad. But just to give her a feel good feeling. She had a good first night at Ma's house. This morning she was quite a bit sore on the right hip so we need to be very gentle with her.
The doctor also said that because it is going to be such a big op we might not be home for Christmas. Soooooooooooo,...................................... we need lots of love, prayer, visits and food. You choose. 

 

Isn't God's creation just amazing. found this beautiful tree in the hospital garden of Constantiaberg Mediclinic. I was sitting 2 days ago on the gras, praying and as I looked up I had this picture in front of me and I thought: just look around God is everywhere, His work is around everywhere,

HOW CAN WE DOUBT HIM?

 

Even the doctor was amazed at how fast Celina recovered. Yes DR Lund did a brilliant job as the nurses and sisters too and not to forget the catering and cleaning people. Yet I do believe that God gives each of them the passion and the heart to do the work they do and to do it so brilliantly.

Thank you Lord for the people you surrounded us with especially in this last 8 1/2 years since Celina's accident.  And a big thanks to all you wonderful people who send in letters to the Kfm Christmas wishlist. Thanks Megan, yours was chosen.

Thank You Lord for always supplying for our needs according to your riches in glory by Jesus Christ(Phil 4:19)

 

We are a bit bored

Celina is all her old self again. Yet still getting Neb's and chest physio, trying to get as much smug as possible out of her lungs before we are going home.

And we got her pram in today too. We went on a little walk through the hospital just to get out of the room. Unfortunately it was too windy otherwise we could have gone outside in the hospital garden.

Tummy position is possible again too. And she is happy and without pain, well for about 20-30 minutes, after that she starts moaning.
Looks like we are going home tomorrow. Home???......Ma's house(believing for our own home,still before Christmas). And then the following week back here to the hospital to have the op, still before Christmas.
That's lots of exiting stuff still to happen before Christmas.


                           With God nothing is impossible.                           

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It's the eighteenth

Today was a bit of a hectic day and I had to sort some things out like getting nappies to get through to the next year, cooking Celina's food for the weekend and other things. Thanks Chaeli Campaign for helping us with nappies. Couldn't have done it without you, you really gave us a big breather this year. And also that Celina could attend your beautiful new school.

Celina was busy too, so I wasn't too worried to leave her alone. It's very quiet in isolation and not really much contact with others too. So, I do not like to leave her alone to long. But she had OT and Neuro Physio and chest physio today and Daddy was there in the afternoon too.
Otherwise she is doing well, yet the doctor decided to keep her for the weekend and he gave us also the news that the surgery is now scheduled for the 18. Dec. That gives Celina another 1 1/2 weeks to heal her lungs completely. For a six hour surgery she needs to be 200% and especially the lungs. The doc also upped the Valium dose to keep her relaxed because any pull on the hips can be fatal. And after the op she has to stay on it, again for the same reason and the doctors are very concerned that she could with any spasm push the femurs out of the sockets again.

I trust and believe that everything will go well from now on and she will heal divinely with lots of Holy Spirit power.

Going forward

Yipee, we are out of highcare since this morning. A little boy came in with a bad lunginfection. He sounded horrible. And suddenly everybody was rushing to get Celina out of highcare. To much risk.
Now we are in isolation the same room we were in last year. Just last year she had the bug, this time she is not alowed to get a bug. I quite like this room. It is nice and light, getting sunshine and guess what I get to sleep in a bed. No lazzy boy. That promisses a gooooooood nights sleep.

"Hello everybody, I am so much better and laughing more and more again. I am sure my op is going to happen next week. Thanks for all your prayer, keep it going."

It was a good day

We had a good day today. Well when we tried to take her off the oxygen this morning but she went again very low with her stads so they put her back on. This afternoon around 5.30  we tried again and this time it worked perfectly. So we are without extra oxygen. Hallelujah!

"Hey I am soooooooo much better and without oxygen and I got a new friend. Do you see "Little Dude" on my head?"

Celina is still on nebs though and we are still waiting for Dr Lund to come for our evening check. He has been an absolut star during this last days. Thank you Dr Lund for always putting extra effort in for our little angel.

And the sisters are amazing too. Ja, well we have VIP status in A-ward, Constantiaberg Medi-Clinic.
Especially Celina. So let's see what the week brings and when we will have the op. But I must say I had the thought creeping in couple of times today that she would have had all behind her already today. Well, before you know it it's all over and we are home with whole and healed hipps, happy, healthy and standing.

                  It was a good day. Thank You Lord.

Seeing the Manifestion of the Victory that Jesus won for us over 2000 years ago

 

04.12.2012 much better already, started adrenalin nebs and cortison last night and it made a huge difference.

                                                                            03.Dec.2012 Lini still very sleepy and on oxygene sheepy praying for her at all times.

 

Surgery now postponed to next week. That gives us a week to clear the lungs and get Celina ready. With God nothing is impossible. Devil you lost the battle over 2000 years ago, you have no authority.

God gave us power and authority through the Holy Spirit to win every battle in our lifes. And Jesus received stripes for our healing, 1Peter 2:24, "...by Jesus stripes we were healed." And so is Celina.

THANK YOU LORD, WE PRAISE YOU.

It's not going to happen.......YET

Celina is still in Highcare and on oxygen. The doctor says she is short of breath, the chest is very tight and the op can't happen. The orthopadic surgeon is going on holiday soon and the best would be to push ist to January, due to the doctor. I don't belief this. I am not impressed and not letting the devil get through with it. The fight is on and with God it is won already. Thank you Lord. I praise you for Celina's healing. Done and dusted. This was last nights stand.

Today things look a little different. The surgeon said he can still do the op until the 14. Dec. So we got a week or so to get Celina's lungs clear and a whole armee of nebulizers and physio and meds are lined up for her.

What a weekend

I was packing Thursday and Friday and had fetched Eldah to look after Celina. When we brought our first load of boxes to Ma's garage to store I went inside to check on Celina she was breathing heavily and fast and she wouldn't eat her lunch. With the time the breathing got worse and she started a temperatur, still low. I was thinking of the surgery on Wednesday and how we do not need to have this. So I decided to bring her to emergency. After 4 hours in ER Celina was admitted into hospital with lunginfection. They started straight away with Antibiotics, nebuliser and oxygene. Her oxygene levels were quite low. Clint went on moving our stuff to Ma's house. Yes we still do not know where to go to. By about 9 pm we arrived in the ward and could finally start settling. We were all tired. Our dear friend Winona got Pizza for us to fill our hungry tummies. Then my poor husband still got our overnight stuff and I had a night on a lazy boy which wasn't to comfortable. Celina was sleeping through the night. She had nebulizers and oxygene right through the night. The morning started with Antibiotics, nebuliser and chest physio, trusting and believing that she will be fit for the surgery on Wednesday. By tonight we must give the keys back. And another season in our lifes came to an end.
After so many challenges this whole year December looks very promissing. God has a plan to finish  the year in BLESSINGS AND ABUNDANCE.

Packing

Wow what a day. Celina is struggeling since yesterday with a little bit of constipation and I am busy trying to sort this out. We really don't need this. My poor husband is not feeling well either since last night and anyway everybody around us seems to get sick. Hey, any germs touching Celina, myself or anybody around us will die on contact in Jesus name. Amen.

And what is going on outside? Thought the wind was good for getting the washing dry but it is not very helpful if one has to run out all the time and pick up the washingstand again because the wind is blowing it over.

Besides all that. I started packing. What a strange feeling packing your belongings and still not knowing where we will go to. And on top of it having a feeling of piece that goes past all understanding. These are our last 3 days in our little humble a home. I wonder if Celina is feeling it. Since yesterday she is just not herself anymore..... no laughter, nothing.

And there is good news too..... our internet fundraiser for Celina is lifting up into really amazing directions and I am so blown away how giving people are. Everytime I get an email about a payment I am in tears and goosebumps. God is good and "He supplies all our need according to His riches in glory by Christ Jesus."(Phil 4:19)
Praise the Lord.

Ok,....5 days left to admission into hospital. We are going in on Tuesday at 8 am. And our little girl is so special they are going into theate on Wednesday with two orthopadic surgeons. TWOOOOOO.
Actually three .... two from the human side and the best surgeon in the wold is coming too .....GOD.
So what can go wrong there????..........NOTHING. Because if God is for us who can be against us.

Pre check-up

I dropped Celina off at the physio's rooms and quickly went to sort some stuff out that I usually do when Celina is at school. Then we had lunch at the hospital restaurant which is usually not in the budget but hey I am earning a little salery since July and some now and again one must spoil oneself. Right??? Then to Dr Lund for the pre check up. When Dr Lund came out of his room to call us in he ask Celina for a smile and guess what she gave him one. Somebody say again she is not reacting. Ja, right.
After checking lungs, stomach, ears, eyes, nose and throat and pulse we were off again. Down the hallway I suddenly thought weren't we supposed to go for bloods??? I turned around and went back and yes of cause we were supposed to. We got our form and went downstairs to Pathcare.

This daughter of mine is unbelievable. When I pushed her in the room to take the bloods she was laughing when they put that band around the arm she just had one sharp look at it and at the nurse but then started laughing again, a short fright when the needle went in and straight back into an outburst of laughter.........only Celina, my brave girl.

Now we are waiting for the bloodresults at home. Otherwise everything is great. Healthy child through and through.  Thank you Lord!

The count down starts

Tomorrow we are going to our pediatician for the pre-checkup. Which also means some pricking of arms for blood. But my girl is great with that, no problem, no crying. She is really brave and still smiling and laughing.

I just send out a fundraiser and had already the most amazing reactions. Wow.

And then we got 6 days to go, to find a new accomodation. Countdown number 1.     6..........
Count down number 2 is for the surgery. And that's 9 days to go.     9.........

I don't know what to say, besides....... God is good ..... we will get a beautiful accomodation this week and the surgery will be a great success.
And that is where I leave it and believe it........and receive it.

Thank you Lord

By the way this all is just a short version of the story. If you want to read the whole story what amazing things God has done in our lives in this last 11 years you unfortunately have to wait til my book is done.

The days at home before surgery

Wow keeping Celina out of crowded areas is not easy. When do I go shopping, and do things I need to do? Ma is a big help but to bring Celina to Ma everytime I need to go to a shop is a shlepp. Anyways like things always go something must happen. I am supposed to keep Celina out of crowded areas because of the infection risk. She must not get sick before the surgery. I don't know if it is helping??? She was fine with a normal school life and all, now at home she has a swollen eye. I do not know if this is a moskito bite or some other stuff in the eye. Well, we just pray and tell that thing to leave Celina's eye area, in Jesus name. Amen.

Otherwise time seems to just run away and so we have not even 2 weeks left until the surgery. And only 1 1/2 weeks to get out of our accomadation and still no place to go to. But God never leaves us, never left us and will never forsake us. So I am exited to see where we are going to.

The surgery and what's happening in our lives

Finally I got a date for the surgery. It's going to be the 5. December but Celina might be admitted already on the 3. December just to make sure everything is ok. It is surposingly a 6 hour op. But with our God you never know. We keep on praying that those femurs pop in back into the sockets, the NEW sockets all by themselves.

Lets see what is happening in our lives else. In June we had to leave the house we rented for 6 years. Let me not get into that it is just too nasty. Then a wonderful woman from my support group let us stay in the back of her house in a seperate entrance which is really small just one small room with a little shower and toilet. I was cooking outside for the last 6 month. Don't worry feels like camping.
Our insurance case for Celina's accident has made some major steps forward and we are hoping to see the end still this year which would give the whole situation a major boost. On the 2. December we have to be out of our current accommodation because the whole house is rented out for the holidays.
Whereto now??? Well, God knows. It's 3 weeks to go. Something will come up. God never leaves nor forsakes us.
And then I will be staying at home with Lini until the surgery. Had to take her out of school which she is attending since April because of infection risk. She must just be kept healthy for the surgery.
Only on Fridays she goes to "Ma's house". And Mommy goes earning some bucks for 2 hours helping disabled young adults doing some crafts. It's fun and even I learn some new crafts. And for me it counts as me time, something I do without Celina.

Clint started walking in the vinyards of Groot Constantia. Mostly with his mom sometimes his brother and sister in law are going to. Keeping fit or maybe better getting fit and then later keeping fit. And also loosing a bit of weight. I went with him on Sunday. And Celina too. Here are some photos of our outing. See also the profile pic.

Celina's life story

Hello to everybody who is following this blog. I decided a while ago to do this but never got to it. Here now is Celina's blog, well our blog because Celina's story is our story.

Celina was born in 2001 already with a little bit of drama. Well, actually the drama began already by trying to concieve her. We tried over a year and nothing happend. Half the church and our family was praying already. Then the visions and pictures and words started coming. And I conceived our beautiful daughter in April 2001. We were extatic. I had the most beautiful pregnancy feeling that little baby growing in my womb having no feeling of sickness what so ever. I was walking, swimming and being a part of our young adults "Jabez" right through and also straight after birth. So you can say Celina was surrounded by worshipmusic and God's word all the time.

Then after Christmas I was surposed to have my next check up on the Monday but my Gyni had a meeting on that day. So all the appointments were rescheduled forward. But mine was changed to the Friday before because someone had canceled. And this was a miracle. When I came to my appointment the doctor gave me the shocking news that I had to go over to the hospital for an emergency ceaserian section. Clint was not at work (Hotel) but out with the limo to fetch something for a guest. And usually he wouldn't have his cell phone on at work. But this day he forgot to put it off and just as he wanted to put it of it rang. I got hold of him. Another miracle. He raced the limo back to the hotel and got into our car to race to the hospital( a different kind of racing from Mercedes to Tazz).

I was still not happy with the ceaser. I wanted a natural birth. Anyway that didn't happen. After the birth Clint went with Celina while the doctor got me all closed up again and send me up to the ward where I was waiting for my little girl. Oh wow holding her having her latch was just amazing. She looked anything else but newborn. She looked just amazingly gorgious. Then Clint went with her to be bathed and the Doctor came in to talk to me. He new I was very upset that I could not have a natural birth. He told me I had pre-eclamsia and the placenta was dead already. Sooooo, if I had my appointment as originally scheduled one of us or both would have been dead. ANOTHER MIRICLE...... A BIG ONE.

Celina 1 hour old, her very first bath.

 2860g, 53cm, born on the 28.12.2001, time 14.43

Now Celina was growing up a healthy and happy child. And I mean really healthy, no colds, no flues, not even a runny nose, eating as healthy as can be. We went every weekend into mountains with with her. First in the backpack then she started walking by herself. With the age of 2 she did not want to go in the backback at all anymore. She walked up to one and a half hour at a time and then after a picknick the whole way back. There was no way to get her into the backpack or even carry her up a whole lot of stairs. She wanted to do it her "ownself". She grew up with German and English and loved puzzles. She was well known in church for running with a little gold flag with Daddy holding a huge Jesus banner. She was full of smiles always laughing very seldom crying but if she did it was really difficult to stop her.

at Cape Point 2 years old

in the mountains with mom and dad 2years and 2 month old

 

A little stuborn and strongheaded ....people say just like mommy. Haha.

In July 2004 Celina fell into a swimming pool and was without heartbeat, pulse or breathing for about 35-40 minutes. Her heart started beating again and she spent 3 month in hospital, lost her speech and her mobility. She was admitted for another 3 month in hospital in 2005 with immense spasms. She progressed amazingly going from being on a feeding tube to oral eating and drinking, from heavy medication to NO medication at all, from blank vision to focusing following and smiling and even laughing and so much more.

I love horseriding almost 4 years old

I smile again and for that uncle doc had to give my mommy a bottle of champain 3 1/2 years old

just being gorgeous about 4years old

 

She hasn't been sick for about 4 years. Then she started being in terrible pain, until the beginning of last year(2010) where we discovered her terrific food intolerances which caused us sleepless nights due to Celina experiencing terrible tummy cramps which continued over months. There was really a little variety of foods that she could still eat. Then in May 2010 we on top of everything else found out by doing an x-ray that Celina's hipps were dislocated on both sides. Celina then spent 4 weeks in hospital mostly intensivecare in Germany during our time while attending my father’s funeral and seeing family. The stay in hospital there gave us quite a harsh interruption on top of what was already going on. She had rabdomyolysis which is a muscle breakdown which is transported through the bloodstream that can cause major and complete damage to the kidneys resulting in kidney failure. Once again we were fighting for her life and won the fight.

Having an EEG done 9 1/2 years old

Germany Hospital getting ready for another transport to a bone scan. 9 1/2 years old

After this experience our daughter was very different. NO Crying anymore, NO Cramps, NO Startles (seizure activity) and all in all very quiet.

Then in December she started with a mild lung infection and we could not get rid of it. She got worse and started cramping again. On the 22. Feb this year we had to admit her to hospital. She was diagnosed with pneumonia, Helico bacter, a bacteria causing stomach ulcers, a loaded colon and immense stiffness after massive spasms caused by the great pain she went through. After performing another food intolerance test we received almost the same results as the previous year, just a little better, yet we were still not able to give her most of the main foods. Due to her stiff body she received physio and because of having lost so much weight, down to 16,5 kg, she was then put on tube food for a while.

We needed to put her back on desposable nappies for the reason that the washable ones caused her to get bad bedsores. We also had to cope with a hairline fracture on her right tibia right below the knee. We ended up with another 3 month of hospital with reacuring lung infections and the threat of the lower lobe of her right lung having to be cut off. On the 13.May she was discharged, still having her lungs not right, however being put on chronic antibiotics and a nasal gastric tube which had to be changed once a week at the hospital. We were happily at home again and started a whole regime of therapies at home. Thankfully this is covered by our medical aid. Celina was started on a row of different foods again and with great success. She put on 7 kg and looked so much better. Then on the 22 of June the great suprise for everyone came especially the doctors. We went for an x-ray of Celina's lungs and they were completely clear and healthy. She is now of f the antibiotics and doing very well. Praise the Lord. On the 8. July came the next set back. Celina broke her right femur just above the knee. She had a cast put on but had to go back after one week. The bone had slipt and needed to be fixed with 3 pins and a new cast was put on too. After only 3 weeks the pins had to be taken out because of super fast healing and they put another cast which was on for another 3 weeks.

After this setback we needed to get her standing to strengthen her bones again and help to get rid of her Osteoporosis.

 

Standing on her 10. Birthday

Standing almost on her own

With prayer and faith we are going forward every day. Celina was in December 2011 standing for up to 20 minutes in a standing frame and a healthy and happy child again.

In January 2012 something happened in her pelvis or with her legs and it was over with the standing and she has increasing pain and started in June again with reflux. We might have to go for a hip surgery to get her femurs back into the hipsockets. This is quite an invasive op. I am not willing to let my daughter any longer suffer. I know God has healed her already but if my faith is not developed enough to have God manifest the healing I am willing to go the medical way, just to stop her suffering and give us back a life worth living. In all this Celina is the most amazing girl and still smiling and laughing and looking most gorgeous.

weekend at Koggelsbaai Oct 2012

Lina at school Sep 2012

After getting a second, third and fourth opinion on Celina’s hips we went back to our orthopedic surgeon and did an MRI which wasn’t too bad and showed two miracles on top of it. Celina’s sockets(acitabuli) are completely normal again. And no word about osteopenia(ostioperosis) anymore.

The downside is that the head of the right femur has a little bit of demage as well as the cartlage theroff. The doctor said that with this there is a risk of the femurs coming out again. Hey but that is not God’s prognosis.

Wow. But Celina is still going in for an op in the next couple of weeks to relocate the femurs into the sockets. This is still a major step and not knowing if we still have a medical aid next year we are having to do some fundraising to cover the post operative care costs. The doctor said this is more important then the op to make this a success. On the other hand this means we can’t push the op to January and will be with Celina in Cast up to just above the waist over Christmas. We will manage and still have a great Christmas remembering the birth of our Lord Jesus. And then also Celina’s birthday on the 28. December.

We are believing for complete healing. And we will go in the moutains and walk again.