Putting on the thinking cap

It's Monday and we are not happy. Well we are but just not about that nothing is changing with Celina. Thought we might go home today but she still sounds the same no difference. Our dear doctor put on his thinking cap and we are trying to check all possibilities and trying to find a specialist or somebody who is working with CP children and maybe knows more what is happening with our little angel. We really don't want to get to the point where they leaving us with just the choice of a peg(feeding tube) in the tummy. So........... we need to find out what is wrong.We did another x-ray this morning and might do more tests. Took some medication off and took her extra Valium she is on off too which leaves her with the normal evening dose. She is still sleeping far too much during the day and her breathing looks at times also quite strange.
We need a breakthrough and get back to normal life.

We stay praying and praising the Lord for the wonderful plans He has for us. And we will praise the Lord until the devil flees in Jesus Name because this sickness is not from God yet the solution and healing is.

All praise to our great big God.

Still in hospital

It's almost 2 weeks. The spasms are gone although we still had this week 2 nights of them. But not that bad.

This was the only position that Celina would stop spasming so I set with her like this until she was in deep sleep and I could get her back on her bed.

Nights are good now and the days too. Just that Celina still sounds like a tractor from the nose. The lungs are fine. I still have feeding problems. She is not eating enough and the drinking is slowly getting better. We are done with tube feeding although that seemed to have been very interesting for her.

Very interesting how I eat. Mmmmmmh.

 



 And then the whole trouble with the hospital kitchen every day because the food was full of pieces. Celina couldn't eat it like that. I talked almost every day to them but nothing seemed to change. Then another manager from the kitchen came to see me. And that was the best thing that could have happened. We agreed on how the food had to be and since then the food is pureed to perfection. And I discovered that they had strawberries and fresh pawpaw, which they now also puree for Celina.
Then this morning we had a little surprise. Wow. Celina got a beautiful doll from the kitchen staff. I was so amazed and overwhelmed.

I love my doll. Must just give her still a name.

Hoping now to go home soon. We are sick and tired of hospital. We had more than enough for this year. Need a break and some good time.

 

Anyway we still thank the Lord for being with us through all of this and strengthening us. He is our help in times of trouble. We praise you Lord always!



It just doesn't stop

September started actually very nice. Celina was well but still a lot at home due to the cold weather and our car not driving. The mornings were very cold still. If it was a little warmer I packed her in very warm and walked her to school. And she has fun. I walked back home and then at lunchtime back to fetch her and we would be brought back home by the Chaeli bus.

 



Then on the 15. Sep Celina started spasming in the afternoon but we still went to a church service. What followed was a total sleepless night trying to have her over our legs on her tummy which was the only place she would stop. In the morning at about 4 I put her on the tummy between Clint and myself over a little rolled up pillow and she fell asleep and we all could still get 2 or 3 hours sleep peacefully. Then she still had OT at 10.30 and after that she started crying. I tried the tummy thing and it first still worked but then later in the afternoon nothing would work anymore and she started spasming again and after a while she also started sweating badly. Her hair was already completely wet and I could not even wipe the sweat out of her face as fast as it was coming. Soooooooo............

at about 8.30 pm we were at hospital children's high care. She had some Dormicum to get her sleep and her dose of Valium was upped to 3 tablets. Drip in for some extra fluid because she was sweating so badly and a nasal gastric tube in and bloods taken.

 

Tuesday we had some results and also a sinus CT scan done but everything was negative. Beautiful clear sinuses, bacterial panel clear, viral panel clear. She wasn't eating or drinking. She had the liquids via drip and tube food was started on Wednesday. Tuesday night I layed hands and prayed for her and from one second to the next she stopped spasming and never started again.

Friday we still did a Helico bacter( stomach ulcer) test and tried different treatment for the nose out. It still doesn't sound right. And one dose of Valium was taken off too because she is sleeping too much and I can't start feeding her.

Also on Friday chest physio and OT at the same time.

Lots of hard working hands.

 

Saturday: Blood test for Helico Bacter is negative but the stool one hasn't yet come through. We took the time and gave Celina a good hair wash and bed bath. She looked so beautiful.

 

I had my beauti spa and food again and feeling much better!

 



Thank You Lord for the quick recovery and all the hands involved doing such a wonderful job.

May they all be blessed abundantly.