Hospital once again

The pooh story on its highest point. Celina started this week to get little seizures and is sometimes not herself anymore so I decided to sort this out once and for all. No laxative seems to really solve the problem and Celina gets more and more blocked up. The doctor admitted her to hospital to sort this problem out. First we had an x-ray done which showed that she was stuffed up to the top and had also a quite big amount of air on one spot. We tried the first day with more laxatives and had no stool. Today she got a nasal gastric tube and they are giving her 100ml of water every hour . Now we sit and wait. Another thing which is happening at this very moment is that the physio is taping her on her tummy. These stripes of special tape are supposingly also helping. Lets see. And they are a nice bright pink. Looks really funky.  Well Lini is not even feeling uncomfortable and watching movies.

 

 

wowwwww nice movie. And I am feeling great. No problem. Last night I kept the ward awake with my laughter.

God is soooooo good. We trust in Him because He is the only one who will never leave nor forsake us and will always love us like no one else can. Thank You Lord!

Going forward

By Wednesday we will be off the morning Valium and just left with 5 mg at night. Aaaaaaand it goes well. We have a slight tightness in the arms and some seizures. They said so at school, I haven't seen any at home. And today even the arms were already much looser again. Unfortunately the pooh story doesn't seem to find an end. She is just not having a stool by herself. Very strange if that doesn't change soon we have to go and get this checked out.
And with the Valium we are going to take a break from the weaning after Wednesday and just watch her. Then in 1-2 month we are going to go on and hopefully latest by January she will be completely off again. The first tablet went very well. And I believe the second will go off great too with no problems.
She is still laughing a lot and the laughter gets so giggly, sometimes its like one is almost waiting for her to say something or just get up. It sounds so normal. Today she burped, looked at me and burst out laughing. Is that not normal child behaviour????? I think so. She is also still standing every day in her standing frame and I started some little grab exercises with her hands and I can feel her grabbing my thumb. It is better on the left hand then the right but anyway I was quite surprised when I did it the first time with her. How exiting!!!!!!

Up the head and looking around and being the happiest child ever ... and no smutched eye.

 

 

Thank You Lord for small miracles AND the BIG ones too. 

If it is not the one thing it is the other

The last month was fairly quiet. Celina is on holiday. 2 of her classmates ended up in hospital with pneumonia and then in the end Celina too. But we were only 2 days in hospital. I reacted very fast this time and caught it super early. We got a nebulizer from a friend and so could do everything Celina needed at home. Celina is very loose and ja I am doing it again I am busy weaning her off the Valium. I now really got a lot of experience with it and we are going very slowly. Every 8 days a 1/4 tablet down. The first 1/2 is gone already and our girl is doing well. Still loose and happy. Now one thinks one can still have a bit of holidays and just relax. Ja .....right.

And with going down with the Valium we now really don't need to run into any dramas. Well like that is with us there must be always something. Celina had for 8 days no stool but shows no signs of discomfort is happy and laughing. There is no sign of constipation, her stool is soft but just don't want to come out. I am running out of ideas and the doctor just put her on a laxative. I don't know if that is helping besides making the stool even softer then it already is. And that is going to be a big mess once the stuff is coming out.
Sorry this is really a poohy story. But that is what our life looks like at times.

Otherwise our little darling is gaining more and more head control especially when she is laying on her tummy where she now lifts up her head and starts looking around in all directions. And I sit and watch this in amazement. It is just amazing that from just laying there on the tummy and not even lifting the head at all but rather pressing one eye into the towel or her hand and ending up with a smutched eye .....to lifting it up and looking around with perfect neck and head movement, looking at her surroundings. Thank You Lord. And her legs are by now so loose that one can just move them around to every direction and even roll our little girl all over the bed backwards and forward.
Now really does that sound like just from a surgery. I don't think so. I believe God has His hand in there big time. And we are going to see far more. Just watch this space.

Sorry no photo today. Our computer needs some sorting and I can't load photos at the moment. But I promise there will be soon some again.

Thank You Lord for Celina's progress past, present and future.

A GLORIOUS weekend

Wow, what a weekend. We have already been last weekend Saturday in Kraaifontein at a meeting with Todd Bentley's healing revival service. How amazing. On our way home Celina moved her legs the whole way home.
Since then she is also very alert and laughing a lot. Then last Friday we went again. We saw a blind woman receiving her eye sight and some deaf people could hear perfectly again and cancer, arthritis and many other sicknesses healed.
On Saturday we went once again. A lady at the meeting had blessed us with petrol money to be able to come back. This night they had prayer lines and Celina was in it. After Todd prayed for her he stepped back and looked at Celina and her face looked so amazing. He said that Celina knows the Holy Spirit. And he gave us some testimonies of other children with a similar condition who were healed some of them not immediately. The one took 8 month to recover completely.
During the service some people broke out into Holy Spirit laughter. When they finally stopped and Todd started teaching Celina burst out laughing for a while.
She is much more loose now in her legs and generally, still bursts out into laughter some now and again. And when I put her on the tummy today she lifted up her head for quite a while and started laughing again.

head up and laughing and looking in the mirror in front of her

Down again and still laughing

 

All that in one weekend. We are believing for complete healing. Who is going to hear the first word and who is going to see the first step. I am so exited. God is good has always been and will always be.

 

Thank You Lord for an amazing weekend, for boosting our faith and for loving us. Thank You for the leg movements, the laughter and the lifting up of her head. Thank You for giving Celina strength to do all those things. And mostly thank You for her complete healing which has started now and will not end until she is back to complete restoration of her whole body.

We praise You and we worship You our Lord and our King!

  

A long Month

Wow this May seemed to have just no end. On the 6.May Celina got out of hospital all healthy and happy again. We spent the last Saturday and Sunday in hospital racing Celina in her standingframe through the long hospital hallways and had such fun. I should have had somebody running with us and filming it.
Since we are back home she is standing every single day and is very happy with it. No problems at all besides maybe the cold weather.

First we tried some warmer clothe Ok that is better but still cold

now that is nice and warm ...blanket wrapped around...yepee....and a warm drink

And now it is really getting too cold and we started putting on the heater. And then it works also without the blanket.
For afterwards I got a little friend to help keep me keep warm.

mommy?......Moooommmm help he is getting a bit heavy on my legs..... warm but heavy

alright that is better. He seems to really like me and he is warm and cuddly

But must he really kiss me???? Urg that is wet and cold.



The time goes slow but steady. The weather is getting worse and worse. Cape Town winter ....stormy and wet. I hate winter. It means not a lot of walks and a lot of time inside. Celina is having lots of position changes and animal therapy. Tigger is a lot around her and she likes to look at our fishies. From Monday to Thursday is school getting there in wind and weather and then on Fridays Mommy helps at the craftworkshop at the Chaeli Campaign which is lots of fun. Sometimes when Ma doesn't have the time to look after Celina I take her with me. She can either watch the others do their craft projects or if I have the time I do a little project with her. But normally she spents the Friday morning with Ma and she is getting a nice bath with hairwash and all by our wonderful nurse Eldah from the Westlake  homebased care. And then there are still all the therapies. Most of them are done at school but on Friday afternoon Celina has her second Occupational therapy session for the week and this one is with Ingrid. Ingrid is doing a lot of play with Celina and a lot of communication via flash cards. This works very well already and Celina gives her answers by looking at the appropriate card. Dolly is a big part of the session too. We are seeing some seizures at the moment but I am quite sure that is
 coming from a very irregular stool which is slowly becoming regular again and the seizures getting out of the picture too. This constipation is often due to the medication Celina had in hospital or when we had to stop the supplements because of financial challenges. But now everything is back on track.

Thank you Ingrid for the wonderful work you are doing with Celina. Celina is combing Dollys hair.

 

Thank you Lord for all the wonderful helpers and therapist you placed in our lifes.