Bad month behind but back home now

Wow another month gone by. We have been in hospital until the 1.Nov. It was a harsh month. Up and down. Every couple of days and always when I started feeding Celina orally again, she had a really bad night with spasms, seizures, cramps and pains and lots of  crying ans screaming. The worst was that no medication would help not even sedatives. The last week we started feeding only tube feeds and that was OK. So on the 1. November we were discharged and were straight away of to Uncle Bertie and Auntie Mish's wedding with Celina as the ring barer.

The weekend went well. I started on Saturday with a little butternut and increased every day a little.
It seemed to work. Then on Tuesday she started a temperature again and the first medication didn't do a thing and the second one needed 3 hours to get the temperature down. Her tummy felt rock hard and she had pain just touching it. Then suddenly she passed a flood of urine. Why is the bladder now playing up again? Anyway the night was OK. Then today she had some sweet potato. During the day she showed some discomfort here and there. The tummy feels quite full and I am playing with the thought to give her an enema.
On the other hand I spent most of the day to find out where to get her formula feed and how much it is and to make ways to pay for it because I am running out of formula on Friday and haven't found a way to purchase more. No answer yet from the medical aid if they would pay for it. I can just trust the Lord that something comes up by Friday. And the stuff is so expensive. We are coming on about
R 4000 a month.
Well, God will make a way, where there seems to be no way.
Otherwise we are very happy to be back home and enjoying the finally arrived spring sun. And Lini is doing well otherwise and laughing again.

I love laying on my  tummy.



Thank you Lord that we are back home and better. Thank you for guiding us through this and never leaving us.