I had an appointment with Celina's dietitian this morning to make plans for Celina's diet for the next 2 month. It is half solids half formula. 3 weeks something new every week and then a month break till January. Just getting in peace over Christmas. Taking no risks.
She had so far only veggies: butternut, sweet potato, squash, Avo, and carrots.
This week we are starting with an egg a day. The portions are still small. And a little coconut oil.
Next week we are going to start some green veggies: broccoli and spinach.
The third week we will bring in peanut butter. And a little less formula and a little more water.
And that's it till January. Then we will meet again to see how Celina is doing and how we go on.
I will need to buy about 3.5 kg of veggies a week and 7 eggs.
This is adding up at the end of the day and including the supplements coming to a lot of money. If you look to your right next to this message I have put Celina's donation account details for those who would like to help with a little donation. And below this is a list of foods we are needing at the moment for those who would like to help us with some veggies or what else is in the list.
I will update the list every week with the new stuff we are trying or actually a week before we start it so that we have it by the time we need it.
This is a long road to go for us and an expensive one too. Every help is appreciated and is taking pressure of us. We have received approval for the next 6 month for the Peptamen Junior formula from the medical aid. Hallelujah our Lord is good. One challenge less. Really a relieve since the stuff cost about R3500 a month. And our funds for medication with the medical aid is finish too. So we need to buy all ourselves until the end of the year. And alone the Movicol for her stools to stay soft is about a R 400 a month. Not even to think of all the other stuff she needs. Supplements etc.
In the meanwhile Celina is doing well. She has a little eye infection that just moved from the left eye to the right. One eye at a time. I also started getting her back into the standing frame for short times of about 20 minutes. Going great. She enjoys school very much and I my free mornings.
Big thanks to all who stood by our side in this last 10 weeks, 7 of which were spent in hospital.
But all Glory goes to God, who never left us and will never leave us. His presents was felt so closely at times. Thank You Lord for carrying us.
No comments:
Post a Comment